Brooke Eby, the TikTok creator who used candid videos and humor to bring the realities of amyotrophic lateral sclerosis (ALS) to a wide audience, died on October 1, 2026, at 37. The Muscular Dystrophy Association (MDA) and Target ALS published remembrances the following day.
Who was Brooke Eby?
Known online as @limpbroozkit, Eby shared direct, often funny accounts of living with ALS. Her videos did not present her only as an advocate: humor and her own creative voice were central to how she told her story. Rolling Stone Australia reported that she had more than 300,000 TikTok followers in its October 3, 2026 obituary; that is an outlet-reported figure, not a current platform count.
In a 2025 interview quoted by Rolling Stone Australia, Eby said: “All I really care that people remember is someone like me could get this disease, and that it took me as quickly as it did.”
When was Brooke Eby diagnosed with ALS?
Eby first noticed a slight limp in 2018, according to the ALS Association. MDA says she experienced four years of unexplained symptoms before receiving an ALS diagnosis in March 2022, at age 33. ALS is also known as Lou Gehrig’s disease.
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Rather than keeping the experience private, Eby documented what living with the disease looked like in everyday life. Her candid videos made the subject more accessible to viewers while raising awareness and funds for ALS causes, Target ALS said.
How did Brooke Eby support the ALS community?
She created a space for patients and caregivers
Eby founded ALStogether, an online Slack community where people living with ALS and caregivers can connect and exchange information. The organization describes itself as a patient-and-caregiver community and says it is a program of the ALS Network.
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ALS Network president and CEO Sheri Strahl said, in a statement quoted by Rolling Stone Australia: “Brooke changed the way people see ALS, but she also changed the way people living with ALS find and support one another.”
She urged researchers and clinicians to move with urgency
MDA says Eby received its Wings Over Wall Street Spirit Award and gave a keynote at the MDA Clinical & Scientific Conference to more than 2,000 members of the neuromuscular disease research and clinical community. Recalling her words, MDA Quest writer and Eby’s friend Mindy Henderson quoted her challenge: “I live at the speed of ALS. Therefore, you need to operate at the speed of ALS.”
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She offered advice rooted in community
Henderson’s MDA remembrance also recalls Eby’s advice to people newly diagnosed with ALS: “Find people who understand. Let yourself grieve. And then, when you’re ready, figure out what your particular gifts allow you to do.”
Independent reader supportYour contribution helps us test, update, and keep practical guides available for everyone.Where did Eby’s family suggest people direct support?
Vogue reported that Eby’s family asked people moved by her story to consider donating to ALStogether or Team Gleason. ALStogether is a peer community for people with ALS and caregivers; Team Gleason supports people living with ALS. The request is a way to support organizations connected to Eby’s work, not a substitute for her broader legacy of storytelling and community-building.
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Eby also worked with Silverts on the B.E. Collection of adaptive clothing. Silverts says a portion of collection proceeds goes to Team Gleason. This was one part of her work, alongside her videos, fundraising, and efforts to connect people affected by ALS.
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